Wednesday, May 27, 2009

my Body Talk session today

After hearing about all the recent surprises, my Body Talk practitioner asked me in for an on-the-house session today because she just had to ask my fibroids what was up. I think on a professional level, she was both upset and curious about recent developments, and for herself as a professional felt the need to get to the bottom of that. I really appreciate that kind of attitude.

For those of you who have not seen prior posts, Body Talk is a form of energy healing in which the practitioner "talks" to the body to uncover information and heal imbalances. I've been doing it for the past year and find it helpful, however have not been doing it intensively (for awhile because I was too busy with other appointments, and more recently because the practitioner told me my body said it only needed to come every 6-8 weeks).

A bunch of interesting things came up.

First of all, when she "asked" them the fibroids said that they were there to protect me, from "hostility" in the world. She asked me what was going on earlier in my career before some of my career achievements, what might have made me feel that I needed to "prove my worth" to others by being successful. In response to this I told the practitioner about how ever since my family moved to Chicago when I was 9, I never felt at home there and always wanted to somehow feel better about being different and rise above what I felt was being surrounded with people who didn't "get" me. That was a big part of going away to an Ivy League school on the east coast, doing something different and "better." Somehow I wanted to prove that I was made out of different stuff than all those kids in my high school I didn't like -- the same reason I wore ultra-preppy clothes in dark and primary colors to distinguish myself from the girls who wore pink and purple outfits with glitter on them.

The main reason I came back to Chicago was that for many years I strongly believed that I had to be there, due to my sister's handicap, both to be supportive to my parents and perhaps someday to take over managing her care. I just didn't consider any other options, it was like a promise I had made mentally somehow. And indeed except for the 2 years I lived in Japan, I stayed in Chicago for years and years. It wasn't until I was 40 years old and read the book Calling in the One (dreadful title, fabulous book) that I realized this subconscious promise I had made that was not serving me, that I was not helping anyone by feeling like I had to stay in Chicago, and within several months I had split town.

In hindsight, how stupid it was of me to come back to a place where all the people I hated from high school (highly materialistic and whose world did not go beyond the Midwest) and people like them were in the majority and were the ones running the town. A place where someone like me, who went to an ivy league school, got an MBA, lived in Japan for awhile and learned fluent Japanese, etc. was viewed as kind of a freak. (Sorry to sound so down on Chicago, there are many wonderful things about the city and I have so many wonderful friends there but it was just not the right place for me!) But I valiantly tried to make it work, spending years frantically scrambling to find those few like-minded people to be friends with (successfully) and to date (unsuccessfully).

It wasn't until I came to California where all the things that had made me seem like an oddball in Chicago just made me average here, and where I suddenly went from never having a date to being what I jokingly told friends was being "the Prom Queen of Palo Alto". (I am a kind of dream gal for the typical Silicon Valley PhD type guy -- a brainy gal who is also cute, and once I got here for the first time in my life I had my pick of guys, and quickly nabbed a charming software programmer who is now my dear husband...)

My practitioner picked up on the words "frantically scrambling" and said that my body has not figured out that things have changed, that I don't need to to frantically scramble anymore, that somehow I am stuck in that mode, especially my endometrial tissue, she says it's like it's scattered, not coherent.

Indeed, there was a lot of frantic scrambling in my life in my 30s, during the time that the fibroids were getting established -- frantically scrambling to establish my own company and to make it successful, scrambling to try to carve out a satisfying social life in a place where there were not many people I could relate to (for example I started not one but two successful social clubs!), and trying to meet the right guy (I put huge amounts of effort into this for years, countless blind dates and showing up at every flavor of social event, before I finally realized I was fishing in the wrong pond).

She said that I need to change my relationship with time, and not always feel like I am scrambling to meet a deadline. In that sense, this whole fertility thing with "we have to have a baby while my eggs are still good" certainly has played right into my issues with time.

She then asked me about my father's mother, an interesting question because I look exactly like her and share some similar interests (e.g. yoga and health food (she was ahead of her time on those)). Sadly, my grandmother had lots of difficulties in her relationships with other people, she was always combative and alienated many of her relatives, and although I didn't spend enough time with her after the point where I would have noticed it, evidently she was a rather difficult person to be around. Even though I don't have those kinds of issues, the practitioner said that I do carry that combativeness at some level. The practitioner said that I need to let go of that kind of combativeness, the feeling that I always have to be primed for a fight or to defend myself. That I need to learn how to switch this off, and only turn it on when I need it, as opposed to having it on all the time.

She said that beneath these issues was also what she called a genetic layer, consisting of "stuff" that had been passed down to me over generations, of feeling that the world is out to get me and is full of enemies. I laughed and said yeah, that's kind of the message you get when you're Jewish and your ancestors were all persecuted for centuries and for the generation before you the horrible memory of the Holocaust is only all too fresh and you are only too aware that many of your relatives were murdered. (I also feel like I got way too big a dose of this kind of information and feeling as a child when it was too hard for me to process it, including lots of coverage in religious school, seeing the TV miniseries Holocaust and the movie Sophie's Choice at too young an age (high school), and things like having the Hebrew school teacher skip class one day when a big report about intermarriage came out so that she could lecture us that we should only date and marry Jewish people or otherwise our people would disappear (don't you think that's a bit much for a 10 year old to have to shoulder?). So in addition to whatever stuff is there "genetically" I think there is a lot there based on what I heard/was told in my youth.

All of this ties up with what Walter, the clairvoyant, told me about my system being too geared up, that I need to get a lot calmer. It seems like I have been on high alert at some deep level for way too long a time. The challenge is, how to get my body and spirit to realize that I am safe, and that I am at home, and don't have to fight the world... I think my fibroids are telling me that I have a lot more work to do...

Saturday, May 23, 2009

Relation between candida and mercury overload

My acupuncturist thinks there is a relation between the candida in my system and the mercury issue, then linking to the fibroids.

Some links that explore this topic.

http://www.cfspages.com/fire.html

http://books.google.com/books?id=9LNeioQO3xwC&pg=PA129&lpg=PA129&dq=candida+mercury+fibroids&source=bl&ots=h68d3sxceA&sig=ouUVwOZN9DjM7nNXAz7CcdStgvg&hl=en&ei=TZgYSryzDYTEtAPGrcDWCw&sa=X&oi=book_result&ct=result&resnum=1
(note, she didn't do anything about the mercury and Candida, and her fibroids continued to grow)

http://www.kitchendoctor.com/healthconditions/candida.html

this one is very comprehensive: http://buellerskitchen.com/?p=191

Yoga to Beat the Blues


Last weekend, in an attempt to be nice to myself and deal with all this stress, I went to a yoga retreat at the Mount Madonna Center a couple of hours away from me -- something I have always wanted to do.

The teacher was Amy Weintraub, author of Yoga for Depression. Even though depression isn't my main emotional problem, I liked the emphasis on how yoga can help you manage your mood so decided to sign up and give it a try.
Amy is one of those people who has learned from yoga masters and created her own synthesis, which she calls LifeForce Yoga. It seems to draw a lot from Kundalini, with an emphasis on breathing and chanting sounds while doing poses. It is indeed very calming and centering.

Amy was a great teacher and I enjoyed the session. Her own personal story of overcoming severe depresssion through yoga (which evidently she tells in detail in her book) is quite compelling. Today she is an excellent teacher who travels the world teaching, is the picture of glowing health, and had brought with her a very handsome male companion, so it appears she has built a very positive life for herself, all of which made me say to myself "You go girl!"
I picked up her DVDs to help vary my home yoga practice. LifeForce Yoga to Beat the Blues Level One and Level 2.

I liked the Mount Madonna Center too, a peaceful setting and simple but nice facilities. A bit of a problem with the food though. It's great that they are vegetarian, but it was hard for me to find enough to eat given that I don't eat wheat or dairy, and am trying to keep things low carb in order to fight my Candida. I need to lose a few pounds anyway, but I was really wishing for some more vegetables and felt lightheaded at a couple of points due to not eating enough.

meeting with the surgeon, and my plan

Met with the surgeon the other day, and got the full MRI report. As I had guessed from looking at the pictures, it's not good news on the fibroids.

Here's what was there, 6 fibroids:

7 x 6.4 x 5.9 cm right lateral ventral intramural/submucosal
5 x 6.7 x 4.7 cm left ventral intramural
3.5 x 3.6 x 3.6 cm left fundal intramural/submucosal
1.5 x 1.3 x 1.5 cm ventral fundal intramural
2.6 x 1.1 x 1.3 cm inferior ventral intramural
.8 x .8 x .8 cm subserosal

Ok, so not only is this more fibroids than I was told that I had, the two biggest ones are a lot bigger than I was told. Furthermore, the relative size of the fibroids that I have seems to bear no relation to what I was told either. I am now completely down on ultrasounds and think they are dangerously misleading.

Based on the number and size of the fibroids, the surgeon said that he could not remove them laproscopically. He did however think he could do an abdominal myomectomy. What would happen is that we would do surgery, then I would have to wait 4 months before trying to conceive.

At this point, my husband and I decided to step back and look at the situation. I could sort of deal with the idea of the laproscopic surgery, but going up to the abdominal myomectomy was just too much for me to handle. Esp. when combined with when I do try to get pregnant, they are going to put me on Heparin in addition to all of the other drugs (see last post for more info on that). At what lengths am I willing to go to have the experience of having a baby in my belly? Plus there is no guarantee that the myomectomy would be successful -- in some cases one might not end up with the uterus in good shape, due to too much scar tissue or other issues. Not to mention all the dangers anytime one has major surgery, such as MRSA etc. We talked about it and decided that perhaps we need to look at another alternative, namely working with a gestational surrogate. The idea feels strange to me at some level, but on the other hand am thinking it would be better for the baby to be in a nice uterus without a bunch of scar tissue and without all that Heparin floating around etc.

So, am looking at the surrogate option. Meanwhile, we are going through a round of IVF this coming month in order to freeze some embryos without further delay. And I am going to keep working on fibroid shrinking, because who knows miracles can happen.

This has all been really stressful for me, which is one reason it has taken me a little while to write and update everyone. After a couple (uncharacteristic for me) crying bouts this week, decided to get some assistance. As mentioned previously I had tried the Emotional Freedom Technique (EFT)doing it myself, and found it helpful. However, this week was feeling so overwhelmed did not know where to begin with it. So I went to go see a practioner nearby, who had excellent reviews on Yelp. It was really helpful and made me feel a lot more calm and centered. I'll keep working on doing the EFT on myself but it's good to have a resource I can go to again if I need additional help to get unstuck.

So, I am not giving up, either on having a baby or on shrinking my fibroids. It's always darkest before the dawn, as they say!

prothrombin mutation


So much going on lately, hardly know where to start getting everyone caught up with everything.

One of the things I did this spring, when our ttc efforts were not working, was to get a set of advanced tests that check for various issues that can lead to problems getting pregnant. These are all tests pioneered by a Dr. Beer, who wrote about them in his book Is Your Body Baby-Friendly?: Unexplained Infertility, Miscarriage & IVF Failure - Explained and Treated (An absolutely fascinating book, if you know anyone who has repeated miscarriages or IVF failure, they should definitely take a look at this.)
Fortunately I tested out ok on the immune issues (a too active immune system can attack the embryo). But we found two genetic defects that I have that could be affecting my fertilty.
One is a defect in the MTHFR gene which means that my body is not processing certain B vitamins properly, including folic acid. That one, however, is not so difficult to deal with. We just gave me new vitamins that have special forms of those B's that my body can process more effectively -- Methyl-Guard and Ultra Nutrient. I'll have to keep using these forever. (Interestingly, my acupuncturist works with a lot of autistic children and says that they often have this same genetic mutation) If one doesn't take these right form of B's you can end up with elevated homocysteine levels, which cause all sorts of problems, but fortunately mine are fine. The L-Arginine and Folic Acid formula that I am taking as an extra boost for my eggs also has the right form of folic acid. (Interestingly, my acupuncturist said that even without the genetic test she would have figured out that I needed the special B's from the Metametrix urine test that I did at about the same time).
The other defect is not such an easy one to deal with. It is called the G20210A prothrombin Factor II mutation. What this means is that my blood clots more easily than other people's. This can lead to little clots that torpedo the embryo as it's trying to implant and grow. So people with this mutuation have trouble getting pregnant, and if they do they often lose the baby. (Although not all the time I am assuming, because otherwise how could people who have this reproduce?)
The way they treat it is to give you Heparin or another blood thinner during the luteal phase and then throughout the pregnancy. Obviously this is a pretty radical approach, and as a result Dr. Beer was considered a radical (and so is my IVF doctor, who worked with him and is carrying on his approach . But it's also scary, these blood thinners are strong and dangerous. And in case you didn't notice, recently people have been dying from Heparin too...

Friday, May 8, 2009

Octomom getting a myomectomy

I never thought I would write about Octomom Nadya Suleman, but guess what she is having a myomectomy. Details here.

Interestingly, she had the fibroids before getting present with the latest eight, and they got bigger while she was pregnant.

She claims that the myomectomy is "mandated" because of fear of "pre-cancerous cells" but based on what I have read that is not a reason to need a myomectomy...

Thursday, May 7, 2009

MRI today

I had an MRI today. The doctor was not available to go over the images with me, but they sent me home with the CD (isn't technology amazing?!).

So I have spent the last hour looking through Google Images with the search terms "MRI fibroids." The pages describing UFE often show MRI pictures of fibroids, so I was able to get a good mini lesson. I can definitely see several fibroids in my pictures, and a couple of them look pretty big to my untrained eye. My uterus looks about halfway between the before and after UFE pictures on this page. It's definitely enlarged somewhat, and interestingly is very round. I can see what look like 4 of the fibroids in there.

I know I need to stop dwelling on the past, but it makes me annoyed that an MRI was not suggested to me earlier (I had sonohists instead, which are supposed to be pretty accurate, but maybe not...). Also, I should have gotten a second opinion when I first was told in late 2007 that the fibroids had gotten a lot bigger but that due to their position I was not a good surgery candidate. At that point before doing something so drastic as surgery (and not even engaged yet!) I thought I would give the natural methods a try for a few months. Then when I had another sonohist 5 months later, I was told that the cavity looked a lot better and that I should start trying to conceive, so I naturally thought I had tamed these beasts, at least sufficiently. I am now feeling very against ultrasounds and wish that I had known to ask for an MRI, or to go to a doctor who would do an MRI. So bottom line for readers, if you aren't sure exactly what your fibroids are up to and you are interested in preserving your fertility or just having better info, it seems like MRI is the way to go.

On the subject of a second opinion, I'm also finding to be interesting reading the website of the well-known fibroid doctor, Dr. Parker, which happens to have "second opinion" as part of its name. He outlines well many of the fibroid-related issues and options. He seems to be fan of the laproscopic myomectomy, which is the specialty of the doctor I will be seeing next week.

Monday, May 4, 2009

Candida!


I have had so much going on lately that I have a real backlog of things I want to share with everyone.

A few weeks ago my acupuncturist did a special fancy urinalysis on me, ordered through a company called Metametrix. She thought it was a good idea as this test tends to "find hidden issues." Well, it certainly did -- the biggest surprise was that I have candida -- which is a yeast overgrowth!

I had heard of this before but assumed it was not a problem for me because I don't eat sugar. However, thinking back on it, as part of my anti-fibroid diet for the past year and a half I have been eating a lot of carbs, especially in the form of rice and beans and apples. On any given day I had at least two of those I would guess. So it seems that my fibroid-shrinking diet had a negative side effect. I also do have to admit that I have gained some weight the past 6-8 months, about 8 pounds (some of this might be due to trying not to over exert myself while trying to conceive, and also the affect of the fertility meds).

The candida basically takes over and creates a toxic environment in your body. So getting rid of the candida is important for detoxing. Looking on the internet, it seems that there are some associations between it and fibroids. (See for example this article, which discusses how a candida waste product acts like estrogen -- yikes!) My acupuncturist definitely thinks that they are related -- she says that both fibroids and candida are phlegm issues, and that clearing up the candida could help the fibroids. It also seems like something important to do on general principles for my health. Furthermore, sounds like getting my body's internal flora in balance will be helpful for pregnancy. And evidently candida houses antibodies that can affect the ovaries so is bad for fertiliy. So let's get rid of it!

More general info on candida here courtesy of another blogger, I'll refer you to that rather than reinventing the wheel here.

So, yet again another big change in my diet is needed. Ugh! I am just so tired of food restrictions. I'm using the book The Body Ecology Diet which is focused on helping clean up candida. Basically every meal you eat a whole bunch of veggies plus either protein or a starch (like potatoes or quinoa or millet). In order to do this and avoid dairy (which is bad for fibroids and also discouraged by the Chinese medicine fertility books) and soy (ditto), and not go above a couple of eggs per week (too phlegm-promoting thus bad for fibroids), I am going to have to eat more meat and poultry because I can't live on just fish.

I do have to admit that my system seems to really like this protein and veggie heavy diet, I feel like I have more energy and my digestion feels better.

Unfortunately the recipes from Body Ecology are not that exciting, I just do not think the author is a very good cook! There were a couple of others on the related website that were ok, especially the easy turkey and lettuce wraps. I have also found a blog devoted to anti-candida eating that looks promising. From there I found one of the better recipes I have had on this diet, a parsnip and ginger soup. (Never realized how delicious parsnips are!) I have ordered a few cookbooks too and will report on which seem good.

So now I'm low-carb gluten-free dairy-free and soy-free, plus organic as much as possible. Rather complicated, especially when trying to eat out!

One benefit could be that eating a lot of protein is supposed to help egg quality: see info here and here.